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Helping Doctors Help Patients
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Doctors: Bound by Secrecy? Victims: Bound by Pain!
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Disease Books > Pelvic Adhesions > Item 13
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Doctors: Bound by Secrecy? Victims: Bound by Pain!
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Hardcover
by Karen Steward and Jill Ronsley
Sales Rank: 274335
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$21.99
At Amazon
on 11-19-2011.
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Features
Hardcover: 347 pages
Publisher: E.L.M. Publishing, Inc.; 1st edition 2007
Language: English
ISBN-10: 0978698207
ISBN-13: 978-0978698201
Product Dimensions:
9.1 x 6.4 x 1 inches
Shipping Weight: 1.5 pounds
Owner Reviews, Ratings, Comments and Criticism
As I read this book, I was reminded of being a teenager with a blood pressure of 180/110 and a resting heart rate of 130 beats per minute. My mother and I consulted with a top cardiologist who couldn't figure out what was wrong with me and wanted to put me on tranquilizers. When my mother and I refused the medicine, he called her in and read her the riot act. This was particularly challenging because the cardiologist was one of my father's best gardening service customers. After shopping around with my mother to 12 more doctors, I finally found one who did the obvious and gave me a test to see if I had an overactive thyroid . . . which I did. Within a few days, I was better with medicine to slow down the thyroid production. Without my mother's obstinate pursuit of a proper diagnosis and cure, I probably wouldn't be alive today.
The same is true for Karen Steward and her daughter, Melissa. Unfortunately, Melissa was suffering from complications brought about by adhesions (where one organ is attached to another so they cannot move freely), a condition for which there is no simple blood test as there is for an overactive thyroid. These two brave women suffered through what my mom and I did for fourteen years rather than fourteen weeks, as was the case for me. I feel sorry for them.
Today, the better medical schools (such as the University of Massachusetts) teach physicians to listen to patients and take what they say seriously. The Stewards mostly found physicians who believed that teenage girls and women usually lie about their conditions . . . and just need something to bring down the swelling (cortisone-based steroids and to calm their nerves (antidepressants).
Research in the internet eventually led Ms. Steward to realize that her daughter could have adhesions. Even with that realization and recommendations from enthusiastic patients who suffered from adhesions, the Stewards found two dishonest physicians who operated on Melissa before finding one who was honest and had the right methods to help her . . . in Germany, far from their home in Texas.
If you have adhesion-related ills, you should read this book. If you have mysterious pains in your abdomen and pelvis, are nauseous a lot, have constipation, and have been told that your bowels are narrowed, you should be checked out by a professional who knows this area. The Stewards had success with Dr. Kruschinski, using a method for keeping surgery from causing new adhesions (surgery is the number one cause of adhesions). You can read information about Dr. Kruschinski and words of advice from him at the ends of the book. You'll also see vivid color photographs of what adhesions look like.
In young women where there have been no surgeries, adhesions can also occur due to endometriosis (growths like the lining of the uterus outside of the uterus). In Ms. Steward's case, she was prone to cysts that grew and dissolved. Each time that happened, there was a risk that adhesions would occur. But each physician they consulted said that there was no chance that Ms. Steward could have her symptoms based endometriosis. Right.
Undoubtedly due to concerns about libel suits, the physicians who did a poor job are described with pseudonyms. I would hope someone would open an investigation into those physicians. Several of them need to have their licenses yanked.
The book also points out the poor way that churches, Christians, friends, and neighbors can behave in dealing with someone suffering from a chronic illness. Even if you or your family doesn't have this problem, you can learn a lot about how to be a better person by seeing how the Stewards reacted to poorly considered words and behavior among those they considered friends and fellow Christians.
The Stewards kept going, in part, based on their faith in God. This book is testimony to the kinds of suffering that can be part of God's plan, just as it was with Job.
Bravo, Ms. Steward! You are a good mom and a good Christian.
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Doctors: Bound by Secrecy? Victims: Bound by Pain!
Available from Amazon
Price: $21.99
Updated on 11-19-2011.
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